This past Tuesday brought with it another long and exhausting day at the hospital, getting a new MRI and meeting with doctors.  It had been over a month since Jonathan first started the Avastin infusions, and it was time for a review.  I was especially interested in speaking with the doctors on this one.  The hope was that the Avastin would diminish Jonathan’s symptoms concerning his vision, lack of ability to read and write, balance issues, and so on.  Unfortunately, not only were his symptoms not at all improved, but he felt SO much worse.  He was left with absolutely no energy, and his state of confusion was at times…

I apologize that it has been such a long time since I last posted an update.  The last three months have honestly been the craziest and hardest we have encountered to date.  So many times I would sit down to write an update, and I would just stare at the screen for several minutes before closing my computer in utter exhaustion.  The one day I finally got a detailed update written out, everything glitched and my work was not saved.  It was easy to walk away after that.  Especially since life was already draining everything out of me.  At this point, so much has happened that half the battle is…